In a heartwarming story of resilience and hope, Daystar Kids, a Rochester-based organization dedicated to serving medically fragile children under the age of 5, is set to embark on a transformative expansion journey with the help of a $3 million state grant. This remarkable initiative aims to double the organization's capacity, providing a lifeline of support and opportunities for these extraordinary children and their families.

Unlocking Potential, Empowering Families

Overcoming Challenges, Embracing Possibilities

Daystar Kids has become a beacon of hope for families like Reina Ramos', whose baby girl was born at just 25 weeks. Ramos recalls the overwhelming worry she felt, fearing that she would have to quit her job to care for her daughter, who requires oxygen, a g-tube, and has been diagnosed with cerebral palsy. However, Daystar Kids stepped in, providing the specialized care and support that Ramos' family desperately needed. The organization's comprehensive approach, which includes special education teachers, nurses, and therapists, has been a game-changer, allowing parents to maintain their livelihoods while ensuring their children receive the exceptional care they deserve.

A Lifeline for Medically Fragile Children

The story of little Leo Mastin further illustrates the profound impact of Daystar Kids. After suffering a lack of oxygen during birth, Leo spent months in the hospital, leaving his parents, Richie and his siblings, in a precarious situation. "When we came to Daystar, it was an unbelievable change; it is very difficult to put into words what the place means to my family," Mastin shares, expressing the immense gratitude and relief his family has experienced. Daystar Kids' specialized programs and dedicated staff have been a true lifeline, empowering these families to navigate the challenges of caring for medically fragile children while maintaining their own well-being.

A Unique Model, a Statewide Solution

Daystar Kids' unique model has caught the attention of Dr. John McDonald, the commissioner of the New York State Department of Health, who praised the organization's efforts, stating, "This is the only place in the state like this, and I think you've built a model that can be replicated across the state, the need is great." The $3 million grant will enable Daystar Kids to expand its reach, doubling its capacity from 60 to 130 enrolled students. This expansion will not only benefit the local community but also serve as a blueprint for similar initiatives across the state, addressing the pressing need for specialized care and support for medically fragile children and their families.

A Brighter Future, One Child at a Time

At the heart of Daystar Kids' mission is the unwavering belief that "children at their very essence, no matter if they have a feeding tube, tracheotomy, take 10 medications a day … they want and desire the same opportunities to learn, thrive and shine as everyone else," as eloquently expressed by Kim Condon, the organization's CEO. With the upcoming expansion, Daystar Kids will be able to provide even more children and families with the resources, support, and specialized care they need to unlock their full potential and embrace a future filled with hope and possibility.